Saturday, November 08, 2008

It's Official, not doing well

I saw my doctor this past week and I am officially still in this flare. The PAN is attacking my joints and I am hurting a ton, having some other issues, and really exhausted. There is also a wicked respiratory thing going through our house, I've been put on a couple medicines to attempt to kick it out and then back on the steroids. I have to go back for tests, they are adding a couple more, in a couple weeks and then see the dr again in 4. He wanted to see me in 3 weeks, but its Thanksgiving and he had no openings. He told me to prepare myself to go back on the cytoxan, but hopefully the steroids will do the trick. (Not holding my breath as they didn't when we tried them a couple months ago for this along with the plaquenil, but still holding a teeny tiny bit of hope.)

So things are not great, but at least my kidneys are still working okay and at this point it does not appear to be affecting any other organs. I am really not ready to go back on the chemo drugs, its been just past 6 months since I came off them. I had hoped I would get a nice reprieve, but no such luck.

In good news we had an awesome Halloween in our new to us house and an even awesomer night when Obama was elected!! And the Hawkeyes beat Penn State today!!!

In other news, that blasted risograph I work with is again NOT WORKING. I had a repair man out on Monday and it decided on Wednesday it was not going to load any new ink and once again none of my troubleshooting efforts are working. Even though I have now gained a lot of risograph troubleshooting knowledge. It loves me, it loves me not...

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